BAR HARBOR – It’s every parent’s worst nightmare, being told your child has cancer.
Now one mother along with many others will be heading to capitol hill in Washington DC advocating for childhood cancer research funding.
Mother Erica Durgin said, “I’m a mother of a survivor of rhabdomyosarcoma which is a type of childhood cancer.”
Erica’s daughter was diagnosed in 2010.
“We went through a year of treatments, 40 weeks of chemotherapy, 6 weeks of radiation I had two younger kids and a husband at home while we lived in Portland for six weeks.”
Erica is part of a group called “46 mommas”. She said they are one of the largest fund-raisers for St. Baldrick’s, raising over 2 million dollars since 2010.
“I am going to Washington DC to capitol hill to get the star act passed,” said Durgin.
She said the star act is the most comprehensive childhood cancer bill ever taken on by Congress.
“Expand opportunity for childhood cancer research, the star act will also enhance the quality of life for childhood cancer survivors. With the research that St. Baldrick’s does they’ll be able to help the survivors have a healthy long life,” said Durgin.
Erica will also be shaving her head, but this isn’t the first she’s done it. Back in 2014, she shaved it on a whim to support her daughter. “And it was the most empowering emotional thing I’ve done.”
Erica said her daughter is doing great. Living life to her fullest, got her culinary certificate, her GED, and even landed a summer job.
“We met a lot of people through the cancer journey, which is kind of weird to say but they’ve helped with being able to support her with her things that she’s wanted to do,” said Durgin.