ELLSWORTH – A Mariaville four-year-old boy is fighting for his life and needs a heart transplant.
Liam Lewis is bright, a ball of joy and loves to dance. But under his bubbly personality is a sick little boy who needs a new heart.
“It’s extremely rare. It’s called Heterotoxy and from what I can understand your heart is supposed to grow in like this, but his is completely flipped in the opposite direction,” said Gabriel Semple, Liam’s father.
Gabriel and his wife, Jamie, got the heartbreaking news when she was five months pregnant.
Liam is also battling Hypoplastic Left Syndrome, which affects the development of the heart.
Semple said he’s had to undergo nine open heart surgeries since he was born and must be closely monitored.
“We are all sitting there worrying about him and not knowing his going to come out or not. He always comes out with a smile on his face. He’s beautiful and I‘m proud to be his grandmother,” said Becky Bunker, Liam’s grandma.
Treatment and care can be extensive.
Despite Gabriel’s employment at Home Depot, the family said they’re falling behind on medical bills and struggling to keep up with their trailer home, which is not in the best shape for Liam’s condition.
According to Bunker, they found a local contractor who will fully repair their new home as a surprise for Liam.
“The home that Gabe and Jamie bought is inadequate for a heart transplant recipient. It’s just not quite up to par, just lots of problems with it and they need a new home to bring him home to,” said Bunker.